Faith

I had the worst day ever.

The study through the NBIRR I’ve been participating in for relief of my TBI and PTSD symptoms has been shut down. I was driving back home from the local coffee hut when I found out. I had called the center to make some more appointments for hyperbaric oxygen treatments and was told the study was shut down and they weren’t seeing patients right now. I would receive a call if and when the study started up again.

NBIRR is a Clinical Trial with Hyperbaric Oxygen (HBOT) to treat 1,000 patients with Traumatic Brain Injury and PTSD. An estimated 600,000 veterans are suffering from TBI and PTSD, the signature injury of the wars in Iraq and Afghanistan. Military medicine has spent billions on therapies with drugs and other interventions that have little or no effect on healing the brains injured by modern combat, IEDs, and repeated exposure to war. NBIRR is a Clinical Trial under the strictest medical guidelines meant to prove the safety and efficacy of HBOT while treating 1,000 patients. HBOT currently is not covered by insurance. The fact is that HBOT has already healed hundreds of patients with a variety of injuries, including TBI and PTSD. The next step is to run a rigorous scientific study to prove that HBOT, in fact, improves the quality of life of brain-injured patients during and after treatment with hyperbaric oxygen. The hope is that, with this evidence and scientific validation, the VA, Congress and the public will insist that the VA, DOD and the military medical system recognize the need and the moral imperative to insure treatments with HBOT. Without the trial, the military medical community will continue to refuse to recognize that HBOT is medically sound, safe, effective and vastly less expensive and more humane than treating veterans with drugs for life. –http://www.razoo.com/story/Nbirr

I was in shock. I could barely say goodbye. Numb with disbelief I hung up the phone and began to cry.  I was devastated.  Hyperbaric Oxygen treatments have changed my life in a really big way. My PTSD is practically gone. I can understand conversations better than I have for 12 years. My mental fatigue is so much better and I have fewer headaches. My quality of life is so much better now compared to even just 6 months ago. You can see my test results and benefits here. And now its over. All gone. I’m incredibly thankful for the healing I’ve received but I really wanted to see just how much better I would get, how much different I could feel. This was just not my favorite day.

Center for Disease Control

Traumatic brain injury (TBI) is a major cause of death and disability in the United States, contributing to about 30% of all injury deaths.1  Every day, 138 people in the United States die from injuries that include TBI.  Those who survive a TBI can face effects lasting a few days to disabilities which may last the rest of their lives.  Effects of TBI can include impaired thinking or memory, movement, sensation (e.g., vision or hearing), or emotional functioning (e.g., personality changes, depression).  These issues not only affect individuals but can have lasting effects on families and communities. –http://www.cdc.gov/traumaticbraininjury/get_the_facts.html

I am not sure how or why the NBIRR decided to stop the study.  I’m incredibly thankful that I was one of the lucky ones able to get into the study. But what frustrates me the most is the staggering amount of veterans and civilians that receive a TBI every year. The treatment they are getting now with common medications is not working and most likely their symptoms are getting worse.  If Hyperbaric Oxygen treatments are working to relieve and possibly eliminate symptoms caused by TBI and PTSD then why isn’t it prescribed more for treatment and made more readily available to survivors? And my favorite question is why can’t it be billed and paid through our insurance companies? I have experienced relief first hand and I have seen the positive changes in the other people I received treatments with.  I hear stories of how it changed someone’s life every time I go for treatment. I can see it in their faces and I hear it in their voices when they share their stories with me. As I think of the other study participants receiving the news of the study being shut down my heart is sick.  The relief we have been getting is gone, taken away by the powers that be at the NBIRR or beyond. Just out of reach.

I finally quit crying and turned my car around to head home. Trying to tell myself to be thankful for the treatments I did get and trying not to focus on what the rest of them might have brought me. I wasn’t sure how I was going to get through this day.  I pulled into my garage, parked my car and grabbed my coffee cup to head inside. But stuck to my coffee cup was my punch card. You know the kind, buy 10 get one coffee free. I reached to grab it and it fell to the floor upside down. When I bent down to pick it up this is what I saw.

0520140813-1I knew then that everything was going to be ok. I wasn’t sure how or when. But I knew I could rest assured that soon things will be better and HBOT will be available for those of us that need it so desperately. It will all work out eventually. I took a deep breath and considered all the work it will take.  It seemed to me a huge endeavor to change laws and make it possible to bill insurance for treatment and to educate people about the healing benefits of HBOT. But I know that there are others out there with voices for those of us that need help. Voices to stand up for us and our needs and make things right.  Faith is a verb. You can’t have faith without action. HBOT will eventually be a common treatment for TBI and PTSD. But I’m not going to sit back and wait for it to happen. I’m going to get up and help get it done.

I have recently been called back for treatments. The study is still closed but Idaho Hyperbarics will still treat those of us that want it. Out of their own pocket. Because that is the integrity of the amazing people who work there. It kind of restores your faith in humanity doesn’t it?  So I’m headed back to get the rest of my treatments. I won’t stay home, you couldn’t make me. I want to see just how much better I can be. Can you blame me?

 

 

For more info on how Hyperbaric Oxygen treatments can help with TBI  click on http://www.hbot.com/faq

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~ by gonefishindd5 on June 25, 2014.

3 Responses to “Faith”

  1. Hang in there, daughter. You are so strong and can build on what you have received so far. There is so much in the news about TBI and there is bound to be more studies and you will be in on it. In the mean time, take advantage of the treatments you can get and know you are so much better than before. What a change in you since you started them. We are with you 100%.

    Like

  2. Diane-we love you tons! and pray you can continue your treatments…..I will be praying for you & praying on faith that these treatments will not be stopped. Love and prayers Travis & Melissa Taylor

    Like

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